Got an Answer?
Most probably he's getting some sex from another woman.Otherwise no matter how tired a guy is,he will need sex at least twice a week ( if not every night).
He must please you as well as getting some pleasure himself too.How about you watching the porn together? Give that a try and try and do the same as whatever tou both are watching :)
OP AGAIN: I would like to show my partner the answers on here.
Maybe hearing how it makes other people feel in the same situation might help..?
It is easier to use porn. He doesn't have to worry that he hurts you. It would be hard for him to see you in pain with your disease during sex while he is having a good time. That would (or at should) make anyone feel like a dick. Don't pressure him for sex. Start by holding hands or a quick peck on the cheek. You don't need sex. You need the closeness.